Saturday, November 20, 2010

La deuxieme partie

Well, it was all very anti-climatic really, Dr. P had not received the necessary info about Eliot's test and was very: it could be this but if it's not then we can do this, or we can not...
Yep, less is not more right now! Anyway, looks like the molars have begun to invade both Henry and Eliot's mouths and they are not happy (read: Matt and I are not happy). It is really hard to console the inconsolable; nothing is working it just hurts Mama and Dada!!!! We are not opposed to tylenol or anything that stops the pain, still, they hurt.
We are trying to be optimistic about life and things in general but I must admit I am feeling more Bitchy Barbara than Susie Frickin Sunshine, that is okay, that is life. I went for a pedi today which somehow seemed to make things a little brighter. Something about bubbling warm water and polish that can pick a girl up.
I am looking forward, looking up, trying to see the light at the end of the proverbial paper-towel roll.

Wednesday, November 17, 2010

The Next Big Thing

Eliot had his big mag3 test with lasix and it looks like his kidney is not doing well at all. Matt and I were more than a little shocked that his function had gone from 19% to 12% in a matter of months! It looks as though the reconstructive surgery they were going to do is not going to happen, instead they are thinking that they may have to just take out the left kidney totally.
Pheeewww, it is so scary!
Dr. B was so kind and patient, we are pleased he is working with us now. Our only thoughts are that Dr. P ( the other doc) may have been to able to save the kidney? Maybe, maybe not. We are going to talk to the nephrologist on Friday, more answers.

All at once we are relieved to know what to expect and scared at the prospect of what is to come. Knowing is key, knowing is what we wanted.

Both boys are chunky-monkeys and doing well, Eliot seems to be a little traumatized by his test more than a little white-coat shy. I keep telling myself that we are doing what is best for him, but it is hard when you see your child so upset. Matt standing by my side and sharing in the experience was so good for both Eliot and I.
There are times when you know the universe is conspiring, that things happen for a reason. Matt being home has been really lovely for the kids and a support system for me. I was joking with him talking about how when he does go back to work I will be spoiled:)

We have not let the hurdles slow down or dampen our holiday spirit. Christmas is my favourite Holiday, we are excited to have a great one this year. Albeit Henry will be getting his eye stent removed early December, it will be the last one. I think that Eliot's kidney will happen later on, we shall see. While I am teary at times when I really take time to think about all of this, I try to think of all the people and things that our family is graced with: love, generosity and kindness from everywhere. This, my second Thanksgiving in the United States, is a time to reflect on things I am grateful for and there are many people and many things to count. They can fix what Eliot has, we have family and friends that are standing so strongly with us. We are not alone and we are not bereft, we are loved. How lucky are we?

Tuesday, November 9, 2010

Fresh Santa

Just a few short days until Eliot will get another mag3 nuclear med. test to determine his kidney function on the left side. Dr. B., the new and improved doc, will be giving us answers which I am both relieved and scared about. I guess watching your baby have to go through tests and lots of poking and prodding makes any mother feel a little circumspect.

My favourite time of the year is approaching, yes, favourite is spelled with a "u" , kay? Christmas! We are getting ready for our big boys to visit what we have come to know as "Fresh Santa", the big guy who we sit on and visit with at the mall in November instead of later, mostly because he is fresh. He is not in mid-december, lines of kids, too many sips outta the old flask, who knows! When we see Santa he is all fresh, pressed and ready to rock Christmas. So, yeah, Fresh Santa this week hopefully:)

Matt and I are poor, poor, poor and our lovely kids don't know and are not lacking for much. We are okay, pressing along and keeping our heads above the proverbial water. Fa, la, la, la, la.