I will be staying at the hospital with him and I am really hoping that he will recover well and not feel too much pain. I have been reading about bladder spasms that can occur in these types of surgeries and I am keeping my fingers crossed that he will not be one of the ones that it affects. They are super painful and require different meds. for pain management. I am just hoping that our little boy's left kidney will stop being damaged by his urinary reflux and hold onto the 12% function that he has. Some is better than none in this case I am told. Nana aka Shirlee will be staying at ours to help with Henry and the go-between times. We would be completely and utterly lost without Nana and Papa.
I am wondering if we will go in when he is being put to sleep? I have been there for Henry a number of times and while it can be a little weird watching your child fight the mask and its effects, I feel as though it is better they see you before they go to sleep. I can hack it if he can, right?
Pheeewww, I have been writing my crazy little O.C.D. lists and pre-packing all of our things for the hospital. I have made lists of what to do with Henry while we are away, lists of what we need to pack, lists of lists to write, I have made checklists and more lists...I am beginning to realize that part of my coping mechanism in these strange times is the illusion of control. I micro-manage everything that is within MY power in the hopes that everything else will just follow suit. Yeah, I know, a little crazy. But hey, whatever works.
Matt is the only person I could ever do any of this with, really, all of it, which is a lot of "this", trust me:) I think back to the moment I knew that I was falling for him and I said that if we got together it would be something "serious" and I was right. Marrying your best friend is awesome, maddening at times, but mostly awesome. Knowing that we have each other throughout all of this makes it okay somehow - that and our two super cool boys. They are tenacious as hell, ha:)
*Updated blog - check
* Felt cathartic release - check
* Ummm, you get the idea:)
R
1 comment:
Amazing how you can maintain your sense of humor through all this. I giggled throught the whole "list for the lists" part because I'm the same way.
Love you!
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